Some may say I overshare on social media but recently I’ve been a bit more reserved…certainly when it comes to some aspects of my life.
I’ve decided to drop the veil a bit and share some of what has been going on for me and for our family.
As you know, I had a stroke just over 6 months ago. The cause of the stroke remained a mystery until around mid-September. All avenues of investigation were taken and only one test remained. I received a phone call telling me I’d tested positive for Fabry Disease. This is a rare genetic condition which causes multiple systems to break down and can cause stroke, heart disease and kidney failure amongst other issues.
About a month ago, I experienced some very strange symptoms. I didn’t actually follow this up with my doctor until about 2 weeks later. I had a gut feeling about what might have happened. Then the doctor said what I had thought – probable heart attack. She referred me off for cardiac investigation which I will be having tomorrow.
Our family is going through the wringer right now. We have no energy to fight these battles but no choice either. We’re struggling in so many ways – emotional, physical, financial. Sean is working as many shifts as he can to keep us afloat but all either of us want is to spend time together. We don’t know what my prognosis is. The GP has said to “make the most of life”…which is a lovely sentiment but not one you really want to hear from your doctor!
I don’t want anyone to think I’m going to die tomorrow (although, I’ll admit there is a part of me that is pretty scared about that possibility). I think I just want people to cut us a little slack and be considerate. Sure, the immediate shock of the stroke and its impact on our lives is dissipating but we have a really long journey still to go and some of it is still rather scary for us.
If you are a person inclined to prayer, we would certainly appreciate if you would offer one for us as we battle each day to keep going.